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ShareTheCaregiving: a program of the National Center for Civic Innovation

Resources for Caregivers

We offer links to RESOURCES that target a vast variety of specific illnesses, and challenges, as well as helpful information, services and support.

Click on the title below to download a helpful booklet.
Caregiving Booklet from EmblemHealth and NAC:
Care for the Family Caregiver: A Place to Start” in PDF format

Click on an organization’s name below to visit their site.

A Place for Mom– Housing Resources

AARP – American Association of Retired People

AARP: Benefits – QuickLINK – Locate Public Benefits in your state

AARP: Prepare to Care – Planning Guide for Families – Booklet

About Assisted Living – Resource for caregivers and individuals who are looking for information on assisted living in their state.

Aging with Dignity – Five Wishes Document

Aging Solutions – Aging Parents and Elder Care

Alliance for Aging Research

All Treatment – Locate local Alcohol and Drug Addiction Treatment Centers in all states. See Programs: for listing of all types of patients served.

ALS Association – The Amyotrophic Lateral Sclerosis Association

ALS – MDA – MDA / ALS News Magazine Current Research

Alzheimers Association

Alzheimers Foundation– Resources

American Academy of Hospice and Palliative Medicine (AAHPM) – to raise awareness of the benefits of hospice and palliative medicine, and help patients and families find the care they need

American Brain Tumor Association

American Brain Tumor Foundation

American Cancer Society

American Childhood Cancer Organization formerly Candlelighters Childhood Cancer Foundation

American Diabetes Association

American Diabetes Association: Statistics about Diabetes

American Hospice Foundation

American Heart Association

American Kidney Fund

American Liver Foundation

American Lung Association

American Parkinson Disease Association

California Caregiver Resource Centers – Resource center for California caregivers

Cancercare, Inc.

Cancer and careers

Cancer Decisions – research and alternative treatments

Cancer Kids – helps children with Cancer tell their stories – Site retired – Archived stories still available

Caregivers Action Network –  (formerly National Family Caregivers Association)

Caregiver Exchange – Canadian Resources, Events and more

CaringBridge – free website for family/caregivers/patients

Caring From A Distance – Resource for Long Distance Caregivers

Caring Today – online magazine

Centers for Medicare information for Caregivers and Medicaid Services

Children of Aging Parents

Christopher & Dana Reeve Foundation

CLINICAL TRIALS – CANCER: Clinical trial research and opportunities change frequently. Below are links to a database of all available bladder, kidney, and prostate trials in the Mid-Atlantic. Patients can browse trials by cancer type, and even filter results based on specific factors related to their diagnosis and prior treatments.
— Bladder Cancer Trials
— Kidney Cancer Trials
—Prostate Cancer Trials

Colon Cancer Alliance

Compassionate Care ALS

Corporate Angel Network, Inc. – Free flights on corporate planes for cancer patients – Online Resource for People with Disabilities

DOROT – NY Seniors/caregivers/volunteers

DyingMatters – Raising awareness of dying, death and bereavement

Elder Abuse and Neglect – Links from basic understanding to resources

ElderCare Locator

Empowering Caregivers

Family Caregiver Alliance

Fighting Chance – life skills for cancer patients

Gail Sheehey (AARP)– The Labyrinth of Caregiving

Gathering Us – A free comprehensive memorial website that brings together communities after the loss of a loved one. Memorial, memories, videos, crowdfunding for expenses or donations, RSVP’s for gatherings, coordinate Volunteers and more.

Gay Men’s Health Crisis

Gift From Within– Post Traumatic Stress Disorder

Get Palliative Care – definition, information, and Provider Directory by state


Health Library – University of Cincinnati – Cancer Information

Home Security List – How to make a home safe for loved ones with with Alzheimer’s or Dementia

Hospice Foundation

Huntington’s Disease Society of America

IPPF: International Pemphigus & Pemphigoid Foundation – information and support

Kidney Cancer Association

Kids Health – Cancer Center – Parent information

Kids Konnected – Children whose parent has cancer support

LeiomyosarcocomaNews on causes and preventitive treatments for Leiomyosarcoma

Leukemia & Lymphoma Society, The

Life Guide: Children and Cancer – informational options


Medicare: The Official U.S. Government Site for People with Medicare

Medicare and Medicaidtools, information and materials – NEW!

Medicare Rights Center – A nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities that includes these sites:
— Medicare Interactive – Free online resource
— Medicare Rights University – Subscription based training resource for professionals— Dear Marci – A free Medicare Rights monthly newsletter of your questions answered

Metlife – Health Advice and resources

Mesothelioma – Mesothelioma Information Center

Mesothelioma – Online Information & Resource site

Mesothelioma and Asbestos Awareness Center

Mesothelioma and Asbestos Resource Center – Free information package available, some web content contains video narration

Mesothelioma Guide – Take Control of your Prognosis

Mesothelioma Help

Mesothelioma Symptoms

Mesothelioma Treatment Community – Nonprofit Resource & Information Center

Multiple Sclerosis Association

Muscular Dystrophy Association

National Alliance for Caregiving

National Cancer Institute

National Caregiving Alliance

National Council for Aging Care‘s- Guide on Military Veteran Benefit Options

National Hospice and Palliative Care Organization – advance directives, living wills

National Marfan Foundation

National Multiple Sclerosis Society

National Ovarian Cancer Coalition

National Resource Center on LGBT Aging – Lesbian, Gay, Bisexual and transgender (LGBT) older adults

National Resource Directory – Services and resources for wounded, ill and injured service members, and veterans, their families and families of the fallen.

National Stroke Association

Navigating Grief: A guidebook for Grief Awareness & Understanding

New York City Family Caregiver Coalition

New York Foundation for Senior Citizens – (All NYC Boroughs) Free Emergency Respite for caregivers of Frail Elderly

NF Mid-Atlantic – A comprehensive resource for Neurofibromatosis

NEXT STEP IN CARE – United Hospital Fund


‘On Our Own Terms’ – Bill Moyers Special

Parkinson’s Disease Foundation

Paying For Senior Care – Understand your financial options for long term care. Use the FREE Eldercare Financial Resource Locator Tool

Planet Cancer – Young adults and children with cancer

Presbyterian Senior Services – Circle of Care

Ronald McDonald House – housing during hospital care

Silvert’s Adaptive Clothing for ElderlyCare

Social Securtity and Disability Resource Center – social security disability and SSI

Social Securtity Disability Secrets

Spinal Cord Injury Information Network – resources for equipment/accessibility

Strength for Caring – the comprehensive web site of The Caregiver Initiative of Johnson & Johnson

Surviving Mesothelioma: A Patient’s Guide – Free copies of “Surviving Mesothelioma” are available to newly diagnosed mesothelioma patients

Susan G.Komen Breast Cancer Foundation – Health services in South West Ontario

Today’s Caregiver Magazine

Theravive – network of therapists and counselors

University of Wisconsin Carbone Comprehensive Cancer Center

US TOO! International, Inc. – prostate cancer support – Eligibility Calculator for ‘Aid & Attendance Benefit’

Well Spouse Association – for spousal caregivers.

Wounded Warrior Project – Wounded Warrior Project is a military and veterans charity service organization empowering injured veterans and their families.