We offer links to RESOURCES that target a vast variety of specific illnesses, and challenges, as well as helpful information, services and support.
Click on the title below to download a helpful booklet.
Caregiving Booklet from EmblemHealth and NAC:
“Care for the Family Caregiver: A Place to Start” in PDF format
Click on an organization’s name below to visit their websites.
AddictionResource.Net – Find the best Drug & Alcohol Rehab Center near you
A Place for Mom– Housing Resources
AARP – American Association of Retired People
AARP: Benefits – QuickLINK – Locate Public Benefits in your state
AARP: Prepare to Care – Planning Guide for Families – Booklet
Aging with Dignity – Five Wishes Document – An easy-to-use legal document that helps you express your wishes ahead of a serious illness
Alliance for Aging Research – Scientific Research
ALS Association – The Amyotrophic Lateral Sclerosis Association
ALS – MDA – MDA / ALS News Magazine Current Research
Alzheimers.net– Resources
American Academy of Hospice and Palliative Medicine (AAHPM) – to raise awareness of the benefits of hospice and palliative medicine, and help patients and families find the care they need
American Brain Tumor Association
American Childhood Cancer Organization
American Diabetes Association: Statistics about Diabetes
American Parkinson Disease Association
Assisted living – Senior Care and Assistive Technologies Resources
Baylor University Online Graduate Program Resources – Older Adults and Food Insecurity and Hunger (comprehensive article)
Better Living Now – Healthcare products, programs and services
California Caregiver Resource Centers – Resource center for California caregivers
CAN – Caregivers Action Network
Cancer Decisions – research and alternative treatments
Cancer.net – Doctor-Approved Patient Information from ASCO
CaringBridge – free website for family/caregivers/patients
Caring Today – online magazine
Christopher & Dana Reeve Foundation – All about research and living with paralysis
Corporate Angel Network, Inc. – Free flights on corporate planes for cancer patients
Disability.gov – Online Resource for People with Disabilities
DOROT – NY Seniors/caregivers/volunteers
Fighting Chance – life skills for cancer patients
Gail Sheehey (AARP)– The Labyrinth of Caregiving
Gathering Us – A free comprehensive memorial website that brings together communities after the loss of a loved one. Memorial, memories, videos, crowdfunding for expenses or donations, RSVP’s for gatherings, coordinate Volunteers and more.
Gift From Within– Post Traumatic Stress Disorder
Get Palliative Care – definition, information, and Provider Directory by state
Home Security List – How to make a home safe for loved ones with with Alzheimer’s or Dementia
Huntington’s Disease Society of America
Incredible Health – Alzheimer/Dementia Guide for nurses & nursing students
IPPF: International Pemphigus & Pemphigoid Foundation – information and support
Kids Health – Cancer Center – Parent information
Leiomyosarcocoma – News on causes and preventitive treatments for Leiomyosarcoma
Leukemia & Lymphoma Society, The
Medicare: The Official U.S. Government Site for People with Medicare
Medicare and Medicaid tools, information and materials – NEW!
Medicare Rights Center – A nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities that includes these sites:
— Medicare Interactive – A free online tool to have all of your questions answered
— Medicare Rights University – Subscription based training resource for professionals
Mesothelioma – Mesothelioma Information Center
Mesothelioma and Asbestos Awareness Center
Multiple Sclerosis Association
Muscular Dystrophy Association
National Alliance for Caregiving
National Hospice and Palliative Care Organization – advance directives, living wills
National Multiple Sclerosis Society
National Ovarian Cancer Coalition
National Resource Center on LGBT Aging – Lesbian, Gay, Bisexual and transgender (LGBT) older adults
National Resource Directory – Services and resources for wounded, ill and injured service members, and veterans, their families and families of the fallen.
Navigating Grief: A guidebook for Grief Awareness & Understanding
New York City Family Caregiver Coalition
New York Foundation for Senior Citizens – (All NYC Boroughs) Free Emergency Respite for caregivers of Frail Elderly
NEXT STEP IN CARE – United Hospital Fund
NYC PARTNERSHIP 4 FAMILY CAREGIVING CORPS– Corporate caregivers
Parkinson’s Disease Foundation
Planet Cancer – Young adults and children with cancer
Presbyterian Senior Services – Circle of Care
Silvert’s – Adaptive dressing Solutions for Seniors and Adults with Disabilities
Social Securtity and Disability Resource Center – social security disability and SSI
SouthWesthealthline – Canadian Resources, Events and more
Spinal Cord Injury Information Network – resources for equipment/accessibility
Strength for Caring – the comprehensive web site of The Caregiver Initiative of Johnson & Johnson
Surviving Mesothelioma: A Patient’s Guide – Free copies of “Surviving Mesothelioma” are available to newly diagnosed mesothelioma patients
Susan G.Komen Breast Cancer Foundation
Theravive – network of therapists and counselors
Veteranaid.org – Eligibility Calculator for ‘Aid & Attendance Benefit’
Well Spouse Association – for spousal caregivers.
Wounded Warrior Project – Wounded Warrior Project is a military and veterans charity service organization empowering injured veterans and their families.
