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ShareTheCaregiving: a program of the National Center for Civic Innovation

SHARE THE CARE End of Year Appeal


I’m still me! Living with dementia
Participants wanted for phone-based study
We will create your own personal Life Story Book!



University FL
LifeStory lab-web
The research lab at the University of Florida (Director: Dr. Susan Bluck) has developed a fun and novel life story activity (i.e., digital Life Story Book) for supporting people with early-stage dementia or memory difficulty, and a family caregiver, during these days of isolation due to the pandemic. 
The activity takes place completely remotely. As this is a research project, besides their own Life Story Book to keep, participants will be paid $60. 
They are also partnering with the Alzheimer’s Association in Florida.
Who can join the study? Qualified people who:
  • Are age 60+ with memory difficulties (early dementia) & friend/family member
  • Have computer, email & internet access
What will I do?
  • Share important memories from your life
  • Provide materials for us to create a Life Story Book for you!
  • Review your Life Story Book daily (2 weeks)
  • Complete questionnaires
Benefits to you:
  • Your own digital Life Story Book
  • $60 for fully completing study
How long does it take?
  • Four phone visits over 2 months.
  • — they set these visits at times that work for you

Want to know more?
We want to hear from you!
Phone: 352 273-3813 (leave a message)
Text: 3352 559-9917

Please find attached the Flyer and information that can be downloaded and shared.
Alzheimers Association
Visit the Life Story Lab website:

SHARE THE CARE End of Year Appeal

STC new logo

December 2020
Dear Share The Care™ Community,
This has been one of the loneliest and darkest years on the planet. Yet HOPE is on the horizon with vaccines that have been developed to eradicate the pandemic. It won’t be an instant fix and it may take some time before we can come together again, without masks, for work, entertainment and sports events, celebrations, and travel. Most of all, we do believe this year has given the world a renewed appreciation of all of our individual relationships, and we anticipate that “No One Should Have To Go It Alone” will take on significant meaning when it comes to caregiving, kindness and community.
All ongoing efforts making new contacts and booking in-person presentations, master classes, keynotes and trainings for 2020 came crashing to a halt early in the year and led us to re-evaluate everything. Our goal for 2021 is to take all of our educational offerings online. To start, this meant recreating our full-day training for professionals into segments to be delivered over consecutive days. Recently, we did our first STC ZOOM training for Lifespan of Rochester and turned our problem into a solution to reach and teach globally.
2021 MARKS THE 25th ANNIVERSARY OF OUR SHARE THE CARE BOOK! In keeping with such an important milestone, we have a NEW logo and will be introducing a NEW STC website in 2021. We are excited to turn another page in our organization’s evolution and venture into new areas where the STC model can make a profound difference (discharge planning and extend STC educational offerings to students of social work and nursing). 
Your support and belief in our work has kept us going strong since 2003. Now, we truly need your gifts to sustain our efforts during these unpredictable times. This year, all of our STC newsletters focused on ways to stay safe and offer help, without in-person contact, and as always, STC groups have embraced the challenge.
Whether you are part of a STC group; or been helped by one; or use STC as a resource for your work with caregivers, please take action now. YOUR SUPPORT IS CRITICAL. Please make a tax-deductible donation of $100, $500, $1,000 or $5,000 now and support STC’s ready-made action plan to organize and sustain a group of friends and neighbors to pool their efforts and support someone they know. Please keep in mind that a STC group is truly critical for people who live alone and have no family nearby to help.
Donate online at and click on ‘SUPPORT US‘.  Or send a check, payable to ShareTheCaregiving/NCCI and mail to:
c/o The National Center for Civic Innovation, 6thfloor
121 Avenue of the Americas
New York, NY 10013-1590
Sheila Warnock
Founder & President
If you are on a STC team, or being supported by one, you can inspire others, as well as increase visibility of STC, by sharing your group’s videos, photos or stories with us. 
Please “LIKE US” on Facebook: Share The Care™, Twitter: ShareTheCareOrgand Instagram: Sharethecareorg



Here are some ideas for making a difference even when we can’t go out to visit others who are ill or put the elderly at risk. Where there is a will, there is a way.

We have grouped the suggestions received so far.

Hand-Washing: From Johns Hopkins: This one we need to do right.

Do it Yourself Face Masks: I heard of a caregiver who freaked out (understandably) because while on a shopping run the clerk sneezed very close to her face. Even though, we are told that we don’t need one, we believe that as caregivers we need protection. We don’t want to take chances nor take away precious facemasks from the doctors and nurses on the front lines. Handmade masks offer some protection from a sneeze that may be the result of allergies and also allow us to feel like we can do something. See below links to sites that show how to make your own mask. Some require a sewing machine, others can be constructed easily with a handkerchief or paper towels and rubber bands.–BOyTiU

FaceTiming is EVERYTHING right now: A caregiver that could help facilitate that would be priceless…it’s something that could be done while still maintaining some level of social distancing, but would do a lot to bring light and connection to someone. We’ve been doing charades, dance parties, dinners, happy hours, etc. all via FaceTime.

Zoom, Skype, FaceTime, etc.:
I regularly texted and called my sons and friends. As we’ve moved to Shelter in Place, I have found more comfort in seeing the people I’m speaking with. I’ve even taken to having “breakfast with granddaughter.” My son sets his iPad on the kitchen counter (as do I) and Bayley eats her breakfast with Cap’n Grandpa. A sunny lift for both of us.

Socializing and gaming:
I had a regular Tuesday night poker game. Again, my son Dan to the rescue. He asked me how I was staying connected and told me his friends have switched their Monday board game night to online. They use DISCORD which is essentially a chatroom app with video and audio capability. Similar to Slack but better for games and shared activities. You don’t have to join a “poker site” or “bridge site” or any other paid specialized app…you can set up your private chat room with your friends or STC group for whatever you want to do together. (PS: Apparently my poker buddies are a bunch of Alter Kockers (Yiddish for “old farts”). More than half informed me they either didn’t have or didn’t know if they had video or microphone capabilities on their computers.)

Telemedicine: We had an amazing doctor who did telemedicine with Peggy…a nurse or caregiver could potentially facilitate FaceTime check-ins with a progressive doctor who was open to communicating in this way.

Food delivery, meal prep, shopping: Some amazing ways that caregivers could help…things could be left on the doorstep

I was challenged by my mother’s demand that NO ONE other than me be allowed into her home. It made the formation of a STC group nearly impossible because she wouldn’t even allow me to tell her friends why they couldn’t come in. Grrr.

Someone suggested that I should have started a “doorstep” STC group. I could have organized people to do my outside errands and then leave things for me or her on our doorstep. (As in our ‘Smaller Inner Team / Larger Outer Team STC group’ idea we mentioned in our last Urgent Suggestion email to you.)

We did have someone cook a few meals and soups to keep in the freezer and had frozen plenty of other stuff, including milk. Meals get to be creative!

For Urban Dwellers: living in a co-op building with a Board, we are easily setting up protocols for owners to volunteer to shop for older individuals who don’t feel comfortable or cannot venture outside.

Bicycle Pharma Delivery Service:
My younger son, Dan, stopped using public transportation about two weeks ago and has been bicycling everywhere in NYC. He put the word out to his network of friends and acquaintances that if they were unable or unwilling to venture outside, he would be glad to make pharmacy and other “urgent” runs for them and leave the order on their doorstep. So, without my having told him about his grandmother, he seems to have figured out the mensch strategy!

Strategies for large families: We are caretaking 3 adult children and 3 grandchildren (3,4 and 5) and 3 dogs here, and ourselves.

Keeping Distance: We are being as strict as possible about keeping distance with others hoping that in a few days we will have an assured clean pod here.

My husband is only allowed to collect the mail and get a newspaper if he wears gloves. Any amazon packages are left on the doorstep for 24 hours to air out! We have disposable gloves but no masks.

Home School: The kids have home school every day except weekends…its more for them to have a structured day. We started on day one with A words and activities and we are moving through the Alphabet. A family circle at the beginning of the day when we sing along with a guitar and we take everyone’s temperature. Everyday has long hiking time on the hills and trails. We end school with a peak and pit of my day and closing songs!

Create a JOY list: This would be the perfect time for a caregiver to work with the care recipient to create a “joy list”…we did this with Peggy…we asked her what her favorite things and activities were, bucket list items, things she missed, movies she loved or had never seen, etc. then we brainstormed as a group to see how we could make these things happen for her in some way…of course, we couldn’t do all of them, but our group had fun with this and got VERY creative…it gave the group something to focus on and helped us to identify simple pleasures and joys and ways they could help (like making sure that she got to listen to her favorite NPR game show every morning).

Please feel free to share these ideas with others and share yours with us as well.

Your suggestions are needed and welcome, please send: and we’ll share with others.

Stay Safe
Stay Healthy.

Sheila and the STC team





With the arrival of the COVID-19 virus, a dramatic shift has occurred throughout the world that impacts every single one of us. We are not attempting to update you on the latest protocols for avoiding getting infected but rather how your team might look at your individual STC group to see where you need back-up, adjustment or change. The team may need to provide more assistance, less assistance or alter their approach. Remember that if your care recipient is elderly and has a serious condition, they are particularly vulnerable. Assign two members to check the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities on a daily basis to keep everyone up-to-date.

The Share The Care book points out that once you have your team up and running there will come a day when something out of the ordinary is occurring and your group will need to hold a second meeting or at the very least have a team conference call to air feelings, thoughts and to make adjustments (see pages 277-285). This usually is the case when there has been a dramatic change in the patient’s condition but applies now to the changes occurring all around us due to the COVID-19 corona virus (see pages 277-285).


Important Suggestions.


Prioritize and Be Proactive: Seek additional information or training to keep your loved one or friend as safe as possible by seeking input from an organization with expertise with their challenge. For example: The Alzheimer’s Foundation or the ALS Association or use our STC Resources page. Check with the patient’s doctor or other health professional regarding adjustments that will be needed.


Isolate yourself if you have symptoms (fever, sore throat, cough, headache, sneezing, throwing up or diarrhea) Team members will need to provide back up.
Wash your hands, wash your hands, wash your hands.


Smaller Inner Team: Think about limiting the number of people who go into the home, and create a Larger Outer Team to provide support to the inner team by: food shopping, cooking, research, walking the dog, and driving others to do errands. The outer team can visit patient online or by phone. See information on Specialist Captains on pages 129-131 in the STC book.


Emergency Plan: Make sure it is up-to-date and that everyone has a copy and post on refrigerator door for EMS. Suggestions for what needs to be included can be found on the handout near the bottom of this page. “Create an Emergency Plan” on the STC website (See CAREGIVERS SECTION for STC DOWNLOADS) . Please review “Suggestions for Organizing during the First Weeks” and “STC 7 Principles” handouts as well.


Refill Meds before they run out. Shop for items that are quickly disappearing from the shelves…toilet paper, paper towels, soap, basic food items. Keep your team informed of what they should pick up when they see it. Buy frozen fruit and veggies as fresh produce may not come be available. Don’t forget to plan how people will be reimbursed for expenses.


Stay Vigilant: If you are supporting someone who lives alone or has no family nearby, please be especially observant, especially if they have any form of dementia or to make sure they are not downplaying any symptoms for COVID-19. Keep in contact and provide family with updates and alert their physician with your concerns.


Brainstorm with your group: For sure there are other issues that will require new approaches or information. It would be a good time to review the STC book’s other chapters. Importantly, a brainstorming session would give everyone an opportunity team to voice concerns and jointly determine how to proceed and even uncover experience or expertise that may prove especially helpful. For example, perhaps you worked on a crew that helped your community following a hurricane, fire or tornado and came away with other valuable teamwork lessons. Review the full 7 STC Principles and support each other.


Please Share Your Solutions: If ever there was a time to share ideas that could benefit other STC groups…THIS IS IT! Please send ideas, new approaches to: and include your contact info, group name, patient challenge, and location (state, country)



Stay calm, strong and healthy.
Sheila and our STC team





2019 End of Year Accomplishments & Appeal

November/December 2019
Dear Share The Care™ Community,
Whew, we had another momentous year! Working diligently, we spoke with a number of hospitals to demonstrate how STC can support and strengthen discharge planning to ease the transition from hospital to home for the patient and their caregiver and reduce hospital re-admissions and caregiver stress and burnout. We are scheduled to continue our discussions with two large hospital systems before year’s end and I hope to report great progress on this front in 2020. Additionally, we presented at quite a number of prestigious conferences. (see highlights below).
This year we made significant strides working with AARP’s Purpose Prize Support Team. We benefited immeasurably from their invaluable coaching, contacts and information to create a powerful prospectus. We’re also now poised to be a part of AARP’s Caregiver social media efforts and state speakers’ bureau in 2020.
We have come a very long way since starting the organization 16 years ago. Today we boast a powerful mission backed by the second edition of our book, a grassroots evidence-informed model built on a philosophy secured by solid principles and systems for sharing responsibilities for people of all ages with varying health concerns or challenges at any stage of the full life cycle. And we have a carefully crafted, highly regarded accredited professional training program, which has already been delivered around the US and S.W. Ontario. Today, we estimate STC has touched at least half a million people in 49 states, 2 territories and 19 countries.
To ensure we maximize this momentum and take advantage of the exciting opportunities for growth, we need your support. Our priority is the need to rebuild our infrastructure, as it is the primary way STC informs and educates as well as receives donations. While society is increasingly aware that we need effective solutions to meet the ever increasing shortage of professional and paraprofessional caregivers, and the ever increasing burden on family caregivers, funding often goes elsewhere, such as to large, disease-specific organizations.
So please, help us provide a better quality of life for the patient and to reduce the stress, isolation, depression and economic hardship of their caregiver and families by teaching the benefits of teamwork.
YOUR SUPPORT IS CRITICAL. Make a tax-deductible donation of $100, $500, $1,000 or $5,000 now and support having a ready-made plan to organize and sustain a group to help care for one’s loved one.
To donate online go to: and click on SUPPORT US.  Or send a check, payable to ShareTheCaregiving/NCCI and mail to:
c/o The National Center for Civic Innovation – 6thfloor
121 Avenue of the Americas
New York, NY 10013-1590
Thank you to each and every one of you!
Sheila Warnock
Founder & President
To help us inspire others and increase our visibility, if you have a STC team, send us your group videos, photos and/or stories and “LIKE US” on Facebook: Share The Care™ and Twitter: ShareTheCareOrg and Instagram: Sharethecareorg