Support Us
 
ShareTheCaregiving: a program of the National Center for Civic Innovation

Covid-19 virus: MORE SUGGESTIONS TO SHARE WITH YOUR STC GROUP

Corona-CommuteCorona-Commute

Here are some ideas for making a difference even when we can’t go out to visit others who are ill or put the elderly at risk. Where there is a will, there is a way.

We have grouped the suggestions received so far.

Hand-Washing: From Johns Hopkins: This one we need to do right.

https://youtu.be/IisgnbMfKvI

Do it Yourself Face Masks: I heard of a caregiver who freaked out (understandably) because while on a shopping run the clerk sneezed very close to her face. Even though, we are told that we don’t need one, we believe that as caregivers we need protection. We don’t want to take chances nor take away precious facemasks from the doctors and nurses on the front lines. Handmade masks offer some protection from a sneeze that may be the result of allergies and also allow us to feel like we can do something. See below links to sites that show how to make your own mask. Some require a sewing machine, others can be constructed easily with a handkerchief or paper towels and rubber bands.

https://youtu.be/4FB–BOyTiU

https://youtu.be/woJ2lNgDShU

https://youtu.be/wfQKeC-QLok

FaceTiming is EVERYTHING right now: A caregiver that could help facilitate that would be priceless…it’s something that could be done while still maintaining some level of social distancing, but would do a lot to bring light and connection to someone. We’ve been doing charades, dance parties, dinners, happy hours, etc. all via FaceTime.

Zoom, Skype, FaceTime, etc.:
I regularly texted and called my sons and friends. As we’ve moved to Shelter in Place, I have found more comfort in seeing the people I’m speaking with. I’ve even taken to having “breakfast with granddaughter.” My son sets his iPad on the kitchen counter (as do I) and Bayley eats her breakfast with Cap’n Grandpa. A sunny lift for both of us.

Socializing and gaming:
I had a regular Tuesday night poker game. Again, my son Dan to the rescue. He asked me how I was staying connected and told me his friends have switched their Monday board game night to online. They use DISCORD which is essentially a chatroom app with video and audio capability. Similar to Slack but better for games and shared activities. You don’t have to join a “poker site” or “bridge site” or any other paid specialized app…you can set up your private chat room with your friends or STC group for whatever you want to do together. (PS: Apparently my poker buddies are a bunch of Alter Kockers (Yiddish for “old farts”). More than half informed me they either didn’t have or didn’t know if they had video or microphone capabilities on their computers.)

Telemedicine: We had an amazing doctor who did telemedicine with Peggy…a nurse or caregiver could potentially facilitate FaceTime check-ins with a progressive doctor who was open to communicating in this way.

Food delivery, meal prep, shopping: Some amazing ways that caregivers could help…things could be left on the doorstep

I was challenged by my mother’s demand that NO ONE other than me be allowed into her home. It made the formation of a STC group nearly impossible because she wouldn’t even allow me to tell her friends why they couldn’t come in. Grrr.

Someone suggested that I should have started a “doorstep” STC group. I could have organized people to do my outside errands and then leave things for me or her on our doorstep. (As in our ‘Smaller Inner Team / Larger Outer Team STC group’ idea we mentioned in our last Urgent Suggestion email to you.)

We did have someone cook a few meals and soups to keep in the freezer and had frozen plenty of other stuff, including milk. Meals get to be creative!

For Urban Dwellers: living in a co-op building with a Board, we are easily setting up protocols for owners to volunteer to shop for older individuals who don’t feel comfortable or cannot venture outside.

Bicycle Pharma Delivery Service:
My younger son, Dan, stopped using public transportation about two weeks ago and has been bicycling everywhere in NYC. He put the word out to his network of friends and acquaintances that if they were unable or unwilling to venture outside, he would be glad to make pharmacy and other “urgent” runs for them and leave the order on their doorstep. So, without my having told him about his grandmother, he seems to have figured out the mensch strategy!

Strategies for large families: We are caretaking 3 adult children and 3 grandchildren (3,4 and 5) and 3 dogs here, and ourselves.

Keeping Distance: We are being as strict as possible about keeping distance with others hoping that in a few days we will have an assured clean pod here.

My husband is only allowed to collect the mail and get a newspaper if he wears gloves. Any amazon packages are left on the doorstep for 24 hours to air out! We have disposable gloves but no masks.

Home School: The kids have home school every day except weekends…its more for them to have a structured day. We started on day one with A words and activities and we are moving through the Alphabet. A family circle at the beginning of the day when we sing along with a guitar and we take everyone’s temperature. Everyday has long hiking time on the hills and trails. We end school with a peak and pit of my day and closing songs!

Create a JOY list: This would be the perfect time for a caregiver to work with the care recipient to create a “joy list”…we did this with Peggy…we asked her what her favorite things and activities were, bucket list items, things she missed, movies she loved or had never seen, etc. then we brainstormed as a group to see how we could make these things happen for her in some way…of course, we couldn’t do all of them, but our group had fun with this and got VERY creative…it gave the group something to focus on and helped us to identify simple pleasures and joys and ways they could help (like making sure that she got to listen to her favorite NPR game show every morning).

Please feel free to share these ideas with others and share yours with us as well.

Your suggestions are needed and welcome, please send: MyGroup@sharethecare.org and we’ll share with others.

Stay Safe
Stay Healthy.

Sheila and the STC team

 

 

 

Covid-19 virus: URGENT SUGGESTIONS TO SHARE WITH YOUR STC GROUP

With the arrival of the COVID-19 virus, a dramatic shift has occurred throughout the world that impacts every single one of us. We are not attempting to update you on the latest protocols for avoiding getting infected but rather how your team might look at your individual STC group to see where you need back-up, adjustment or change. The team may need to provide more assistance, less assistance or alter their approach. Remember that if your care recipient is elderly and has a serious condition, they are particularly vulnerable. Assign two members to check the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities on a daily basis to keep everyone up-to-date.

The Share The Care book points out that once you have your team up and running there will come a day when something out of the ordinary is occurring and your group will need to hold a second meeting or at the very least have a team conference call to air feelings, thoughts and to make adjustments (see pages 277-285). This usually is the case when there has been a dramatic change in the patient’s condition but applies now to the changes occurring all around us due to the COVID-19 corona virus (see pages 277-285).

 

Important Suggestions.

 

Prioritize and Be Proactive: Seek additional information or training to keep your loved one or friend as safe as possible by seeking input from an organization with expertise with their challenge. For example: The Alzheimer’s Foundation or the ALS Association or use our STC Resources page. Check with the patient’s doctor or other health professional regarding adjustments that will be needed.

 

Isolate yourself if you have symptoms (fever, sore throat, cough, headache, sneezing, throwing up or diarrhea) Team members will need to provide back up.
Wash your hands, wash your hands, wash your hands.

 

Smaller Inner Team: Think about limiting the number of people who go into the home, and create a Larger Outer Team to provide support to the inner team by: food shopping, cooking, research, walking the dog, and driving others to do errands. The outer team can visit patient online or by phone. See information on Specialist Captains on pages 129-131 in the STC book.

 

Emergency Plan: Make sure it is up-to-date and that everyone has a copy and post on refrigerator door for EMS. Suggestions for what needs to be included can be found on the handout near the bottom of this page. “Create an Emergency Plan” on the STC website www.sharethecare.org (See CAREGIVERS SECTION for STC DOWNLOADS) . Please review “Suggestions for Organizing during the First Weeks” and “STC 7 Principles” handouts as well.

 

Refill Meds before they run out. Shop for items that are quickly disappearing from the shelves…toilet paper, paper towels, soap, basic food items. Keep your team informed of what they should pick up when they see it. Buy frozen fruit and veggies as fresh produce may not come be available. Don’t forget to plan how people will be reimbursed for expenses.

 

Stay Vigilant: If you are supporting someone who lives alone or has no family nearby, please be especially observant, especially if they have any form of dementia or to make sure they are not downplaying any symptoms for COVID-19. Keep in contact and provide family with updates and alert their physician with your concerns.

 

Brainstorm with your group: For sure there are other issues that will require new approaches or information. It would be a good time to review the STC book’s other chapters. Importantly, a brainstorming session would give everyone an opportunity team to voice concerns and jointly determine how to proceed and even uncover experience or expertise that may prove especially helpful. For example, perhaps you worked on a crew that helped your community following a hurricane, fire or tornado and came away with other valuable teamwork lessons. Review the full 7 STC Principles and support each other.

 

Please Share Your Solutions: If ever there was a time to share ideas that could benefit other STC groups…THIS IS IT! Please send ideas, new approaches to: MyGroup@sharethecare.org and include your contact info, group name, patient challenge, and location (state, country)

 

THANK YOU FOR ALL YOUR BEAUTIFUL WORK.

Stay calm, strong and healthy.
Sheila and our STC team

 

 

 

 

2019 End of Year Accomplishments & Appeal

November/December 2019
Dear Share The Care™ Community,
Whew, we had another momentous year! Working diligently, we spoke with a number of hospitals to demonstrate how STC can support and strengthen discharge planning to ease the transition from hospital to home for the patient and their caregiver and reduce hospital re-admissions and caregiver stress and burnout. We are scheduled to continue our discussions with two large hospital systems before year’s end and I hope to report great progress on this front in 2020. Additionally, we presented at quite a number of prestigious conferences. (see highlights below).
This year we made significant strides working with AARP’s Purpose Prize Support Team. We benefited immeasurably from their invaluable coaching, contacts and information to create a powerful prospectus. We’re also now poised to be a part of AARP’s Caregiver social media efforts and state speakers’ bureau in 2020.
We have come a very long way since starting the organization 16 years ago. Today we boast a powerful mission backed by the second edition of our book, a grassroots evidence-informed model built on a philosophy secured by solid principles and systems for sharing responsibilities for people of all ages with varying health concerns or challenges at any stage of the full life cycle. And we have a carefully crafted, highly regarded accredited professional training program, which has already been delivered around the US and S.W. Ontario. Today, we estimate STC has touched at least half a million people in 49 states, 2 territories and 19 countries.
To ensure we maximize this momentum and take advantage of the exciting opportunities for growth, we need your support. Our priority is the need to rebuild our infrastructure, as it is the primary way STC informs and educates as well as receives donations. While society is increasingly aware that we need effective solutions to meet the ever increasing shortage of professional and paraprofessional caregivers, and the ever increasing burden on family caregivers, funding often goes elsewhere, such as to large, disease-specific organizations.
So please, help us provide a better quality of life for the patient and to reduce the stress, isolation, depression and economic hardship of their caregiver and families by teaching the benefits of teamwork.
YOUR SUPPORT IS CRITICAL. Make a tax-deductible donation of $100, $500, $1,000 or $5,000 now and support having a ready-made plan to organize and sustain a group to help care for one’s loved one.
ACT NOW, EVERY DOLLAR COUNTS
YOUR GIFTS ARE TAX DEDUCTIBLE
To donate online go to: www.sharethecare.org and click on SUPPORT US.  Or send a check, payable to ShareTheCaregiving/NCCI and mail to:
ShareTheCaregiving/NCCI
c/o The National Center for Civic Innovation – 6thfloor
121 Avenue of the Americas
New York, NY 10013-1590
Thank you to each and every one of you!
WE WISH YOU AND YOURS A JOYOUS HOLIDAY SEASON.
 Sheila
Sheila Warnock
Founder & President
To help us inspire others and increase our visibility, if you have a STC team, send us your group videos, photos and/or stories and “LIKE US” on Facebook: Share The Care™ and Twitter: ShareTheCareOrg and Instagram: Sharethecareorg
2019 ACCOMPLISHMENTS

Share Your Share The Care Stories!

Help Share the word about Share The Care™
Over the next couple of months we’ll be refreshing our online and social content (website, Instagram, Facebook, etc.).
Real stories help people like yourself as well as foundations and organizations understand the difference even the smallest group can make.
Please share your STC experiences! Send us your photos, memories and videos. Or take a minute to post your memories (and help build our links) to:
And please forward this email to your group. You’ve all helped someone you know. Now help others who don’t know they need you.
Thank you.
Warmly,
Sheila

2018 End of Year Accomplishments & Appeal

November/December 2018
Dear Share The Care™ Supporters,
In 2018, we put the pedal to the metal, attending or speaking at a number of important conferences, leading a STC training and participating at a summit focused on respite for caregivers. All of these events recognized what we have been broadcasting for years, the coming 2030 aging crisis–a time when there will not be enough health professionals or people to take on the care of 71 million boomers over 65, many of whom will need support.
During the year, we identified an immediate phenomenon where STC can provide help: during the patient’s transition from hospital to home. Here the care team, and not just the family caregiver, can be instructed on how to care for the loved one to avoid hospital re-admission, an all too common occurrence in the face of caregiver stress, burnout or social isolation due to lack of support. Many hospitals have “People”- Centered Care Programs, a natural fit for STC to be introduced at discharge, or during hospital support groups after receiving a difficult diagnosis.
We will add this focus to our work in the coming year as we continue to introduce STC to the friends, neighbors, and faith communities where many seek help, assist working caregivers who find themselves overwhelmed as they juggle their caregiving duties with their jobs and family responsibilities, strive to incorporate STC into the curriculum for social work and nursing, and work to offer a Spanish edition of STC.
Your Support Has Never Been More Critical.  We have our work cut out for the coming year and far beyond. To accomplish any of this and ultimately make “Let’s Start an STC Group” the household refrain when faced with a family caregiving medical or aging crisis, please donate to ShareTheCaregiving with a meaningful tax-deductible donation of $100, $500 or $1,000 now. Perhaps you’ve just become a family caregiver or were helped by an STC group, regardless, please reflect on the value of having a ready-made plan to organize and sustain a group to help you care for your loved one.
PLEASE TAKE ACTION NOW
EVERY DOLLAR COUNTS – YOUR GIFTS ARE TAX DEDUCTIBLE
To donate online go to: www.sharethecare.org and click on SUPPORT US.  Or if you prefer to send a check, please make it payable to ShareTheCaregiving/NCCI and mail to the address below:
ShareTheCaregiving/NCCI
c/o The National Center for Civic Innovation – 6thfloor
121 Avenue of the Americas
New York, NY 10013-1590
Please send us your STC group videos, photos and stories to inspire new groups.  Please increase our visibility “LIKE US” on Facebook: Share The Care™ and Twitter: ShareTheCareOrg and Instagram: Sharethecareorg 

2018-Accomplishments
We want to share two videos that Phyllis Quinlan, PhD, RN-BC and I (Sheila) did recently at the Planetree Conference in Boston, thanks to Kistein Monkhouse, MPA – PatientOrator.
What makes them special is that we cover the Share The Care model from different perspectives: the layperson who lived and helped create it and the professional who understands its true value for hospital person-centered care programs.
Sheila Warnock | Share The Care: Improving Quality of Life for Anyone Who Needs Support
Phyllis Quinlan, PhD, RN, BC | Elevating Patients, Family Caregivers, & Healthcare Professionals
Clicking on the above video links will take you to the STC YouTube Channel to view them.
A heartfelt thank you to all of our supporters!

Warm wishes to you and yours for
A MEANINGFUL HOLIDAY SEASON.
Sheila< Sheila Warnock
Founder and President

Sheila is a 2018 AARP Purpose Prize Fellow

Dear Caregivers and Supporters,

It is with great pleasure that we share this news with you today. Sheila has been named one of ten 2018 AARP Purpose Prize Fellows.  She finds it such an incredible honor it is to be among the outstanding Prize Winners and Fellows.

Thank you, AARP for recognizing the work of older adults, like Sheila, who are working to make inroads into some of our most critical social challenges.
From the Board Members of ShareTheCaregiving, Inc.

 

FOR IMMEDIATE RELEASE:
October 30, 2018

 

MEDIA CONTACT:
AARP Media Relations, 202-434-2560, media@aarp.org, @AARPMedia
AARP Announces 2018 AARP Purpose Prize Winners;
Five $60K Awards Will Be Presented at Dec. 5 Gala in D.C.

 

WASHINGTON, DC—AARP today announced the five winners of the 2018 AARP® Purpose Prize® award which recognizes outstanding work by people age 50 and over that is focused on advancing social good. In recognition of their outstanding work, each winner will receive a $60,000 award from AARP at the AARP Purpose Prize Award Gala, to be held in Washington D.C. December 5, featuring a conversation with Pulitzer Prize-winning author and historian Doris Kearns Goodwin.
Concurrently, AARP announced 10 AARP Purpose Prize Fellows who will be also honored at the Washington gala for the community-focused work of the organizations they each lead. Each will receive a $5,000 award.

 

“In just about every community in the country there are older adults who find unique ways to address tough social challenges and help others and we are proud to highlight some of the very best examples of this phenomenon with the AARP Purpose Prize award,” said AARP CEO Jo Ann Jenkins.

 

The winners of the 2018 AARP Purpose Prize award are:

 

Sayu Bhojwani, New American Leaders, New York, New York
– New American Leaders seeks to inspire immigrants (first- and second-generation Americans) to run for elected office and provide support and training to those who do.

 

– Karen Cassidy, Hildegard House, Louisville, Kentucky
Hildegard House provides free end-of-life hospice care for terminally ill people who are homeless or without family.

 

Susan Cotton, The Lily Project, Westlake Village, California
– The Lily Project provides cervical cancer screening and treatment to women in Nicaragua’s rural villages.

 

Bettye Perkins, Today’s Students Tomorrow’s Teachers, Elmsford, New York
– Today’s Students Tomorrow’s Teachers mentors high school students from culturally diverse and economically challenged backgrounds who are interested in pursuing a career in teaching, providing financial assistance to attend college and build a career in education.

 

Monica Kamal Spaeni, Access Ability Wisconsin, McFarland, Wisconsin
– Spaeni, paralyzed after a skiing accident, leads Access Ability Wisconsin which works to make outdoor wheelchairs and sporting equipment available to disabled people free of charge.

 

The 10 2018 AARP Purpose Prize Fellows are:

 

Kristy Baxter and Mark Griffin, Understood, New York NY

 

Patrick Coggins, AskMyBuddy, West Palm Beach FL

 

Veronica Nora de Hoyos, Las Comadres Para Las Americas, Austin TX

 

Donna Gambrell, Appalachian Community Capital, Christiansburg VA

 

Lisa Gualtieri, Recycle Health, Boston MA

 

Marc Sophos, Media for the Public Good/OutCasting Media, Dobbs Ferry NY

 

Laura Talmus, Beyond Differences, San Rafael CA

 

Sheila Warnock, Share The Caregiving, New York NY

 

Karen Young, Sweet Readers, New York NY

 

About AARP
AARP is a nonprofit, nonpartisan organization, with a membership of nearly 38 million that helps people turn their goals and dreams into ‘Real Possibilities’ by changing the way America defines aging. With staffed offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands, AARP works to strengthen communities and promote the issues that matter most to families such as healthcare security, financial security and personal fulfillment. AARP also advocates for individuals in the marketplace by selecting products and services of high quality and value to carry the AARP name. As a trusted source for news and information, AARP produces the world’s largest circulation magazine, AARP The Magazine and AARP Bulletin. AARP does not endorse candidates for public office or make contributions to political campaigns or candidates. To learn more, visit www.aarp.org or follow @aarp and our CEO @JoAnn_Jenkins on Twitter.

SEEKING CAREGIVER WITH STC GROUP FOR JOURNALIST

Dear Caregivers…
A journalist is doing an article for AARP on the Share The Care™ model as well as the ShareTheCaregiving organization and would like to speak briefly to a family caregiver who is benefiting or has benefited from having the support of a Share The Care group.
Please contact us right away at info@sharethecare.org…we need to get her your information as soon as possible.
Please include your:
Name:
Email:
Telephone:
Relationship to care recipient:
The Challenge/Illness:
Is your group currently active?
Recently active?
How many in the group:
THANK YOU VERY MUCH!
We appreciate you help!
Sheila