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Archive For: Sheila’s Thoughts

Covid-19 virus: URGENT SUGGESTIONS TO SHARE WITH YOUR STC GROUP

With the arrival of the COVID-19 virus, a dramatic shift has occurred throughout the world that impacts every single one of us. We are not attempting to update you on the latest protocols for avoiding getting infected but rather how your team might look at your individual STC group to see where you need back-up, adjustment or change. The team may need to provide more assistance, less assistance or alter their approach. Remember that if your care recipient is elderly and has a serious condition, they are particularly vulnerable. Assign two members to check the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities on a daily basis to keep everyone up-to-date.

The Share The Care book points out that once you have your team up and running there will come a day when something out of the ordinary is occurring and your group will need to hold a second meeting or at the very least have a team conference call to air feelings, thoughts and to make adjustments (see pages 277-285). This usually is the case when there has been a dramatic change in the patient’s condition but applies now to the changes occurring all around us due to the COVID-19 corona virus (see pages 277-285).

 

Important Suggestions.

 

Prioritize and Be Proactive: Seek additional information or training to keep your loved one or friend as safe as possible by seeking input from an organization with expertise with their challenge. For example: The Alzheimer’s Foundation or the ALS Association or use our STC Resources page. Check with the patient’s doctor or other health professional regarding adjustments that will be needed.

 

Isolate yourself if you have symptoms (fever, sore throat, cough, headache, sneezing, throwing up or diarrhea) Team members will need to provide back up.
Wash your hands, wash your hands, wash your hands.

 

Smaller Inner Team: Think about limiting the number of people who go into the home, and create a Larger Outer Team to provide support to the inner team by: food shopping, cooking, research, walking the dog, and driving others to do errands. The outer team can visit patient online or by phone. See information on Specialist Captains on pages 129-131 in the STC book.

 

Emergency Plan: Make sure it is up-to-date and that everyone has a copy and post on refrigerator door for EMS. Suggestions for what needs to be included can be found on the handout near the bottom of this page. “Create an Emergency Plan” on the STC website www.sharethecare.org (See CAREGIVERS SECTION for STC DOWNLOADS) . Please review “Suggestions for Organizing during the First Weeks” and “STC 7 Principles” handouts as well.

 

Refill Meds before they run out. Shop for items that are quickly disappearing from the shelves…toilet paper, paper towels, soap, basic food items. Keep your team informed of what they should pick up when they see it. Buy frozen fruit and veggies as fresh produce may not come be available. Don’t forget to plan how people will be reimbursed for expenses.

 

Stay Vigilant: If you are supporting someone who lives alone or has no family nearby, please be especially observant, especially if they have any form of dementia or to make sure they are not downplaying any symptoms for COVID-19. Keep in contact and provide family with updates and alert their physician with your concerns.

 

Brainstorm with your group: For sure there are other issues that will require new approaches or information. It would be a good time to review the STC book’s other chapters. Importantly, a brainstorming session would give everyone an opportunity team to voice concerns and jointly determine how to proceed and even uncover experience or expertise that may prove especially helpful. For example, perhaps you worked on a crew that helped your community following a hurricane, fire or tornado and came away with other valuable teamwork lessons. Review the full 7 STC Principles and support each other.

 

Please Share Your Solutions: If ever there was a time to share ideas that could benefit other STC groups…THIS IS IT! Please send ideas, new approaches to: MyGroup@sharethecare.org and include your contact info, group name, patient challenge, and location (state, country)

 

THANK YOU FOR ALL YOUR BEAUTIFUL WORK.

Stay calm, strong and healthy.
Sheila and our STC team

 

 

 

 

STC Conferences!

We have several great opportunities during the rest of this year to spread the word about our evidence-informed STC model and to network with brand new audiences. My attendance at the important conferences listed below would allow me to make valuable connections that could lead to significant visibility and progress for STC and our organization.
However, we do need your support to enable us to attend.
Please help us raise $6,000
to cover travel, hotel and conference fees.
We ask that you TAKE ACTION NOW as our first conference is in June. A generous tax-deductible donation of $100, $500 or $1,000 or more would help us. Or pool your donation with others in your group for one larger one.

To donate online go to:  www.sharethecare.org and click on any SUPPORT US button.

If sending a check, please send to the address below and make it payable to:

ShareTheCaregiving/NCCI
CONFERENCES
(Fortunately in a couple of instances the conference fee is covered by a scholarship or gift, as listed below each conference.)
Services Unites
SERVICE UNITES CONFERENCE – POWERED BY POINTS OF LIGHT
Atlanta, GA. June 17-20
The goal is to collaborate and ensure the volunteer sector continues to grow and innovate in this rapidly changing world. As the world’s largest service-related convening, it brings together more than 2,500 nonprofit, government, business and civic leaders to gain and share the knowledge, resources and connections needed to galvanize the power of people to create change globally.
L’Oreal Paris Women of Worth has provided me with a scholarship to cover the conference fee.
PlaneTree
2018 PLANETREE INTERNATIONAL CONFERENCE ON PERSON-CENTERED CARE
Boston, MA. October 7-10
Planetree is a non-profit organization that provides education and information in a collaborative community of healthcare organizations, facilitating efforts to create patient-centered care in healing environments.
We have just received notice that we are 1 of 15 selected to present! This is huge!!
Caregiving.com
THIRD ANNUAL NATIONAL CAREGIVING CONFERENCE
Chicago, IL. November 8-10
A three-day event for caregivers sponsored by CareGiving.com. It will include a 2018 VISIONARY AWARD reception for five winners and if you recall, I am one of them. We will also participate in panels during the conference and I will have plenty of network time to meet caregivers and introduce them to STC.
Because I am a Visionary Award Winner my conference fee has been waived by CareGiving.com.
NHCGNE
NATIONAL HARTFORD CENTER OF GERONTOLOGICAL NURSING EXCELLENCE (NHCGNE) LEADERSHIP CONFERENCE:
 
THRIVING TOGETHER AS WE AGE: OLDER ADULTS AND THEIR CAREGIVERS
Boston, MA. November 13-14
A one and one-half day event for gerontological nursing leaders. One of the objectives of this conference is to broaden the discourse on aging, diversity and formal and informal caregiving for persons with dementia and other disabling conditions related to aging.
I am fortunate to have received an invitation to introduce STC and have a discussion about our caregiving formula at a lunchtime table discussion. 

End of year 2016: Final Appeal

SHARETHECAREGIVING INC. A PROGRAM OF
THE NATIONAL CENTER FOR CIVIC INNOVATION

Before you start the New Year…
Take a minute to check out this inspiring story from Anchorage, Alaska: click on this link. It speaks volumes about Share The Care’s power to change lives through caring and loving.

Be a part of the STC movement to create a more caring and compassionate world! Together we can work to empower people with “the plan” they need to support a family member, a friend (who lives alone), a neighbor or a co-worker during a health, aging or medical crisis …just as Sherri’s wonderful STC group is doing for her.

Sherri on her birthday
Sherri on her birthday.

The STC model has helped hundreds of thousands of people. Your donation of $50, $100, $500 (or whatever amount you can afford) will make it possible for us to continue to address the serious and fast growing need for caregiving support. Please help. No one should have to go it alone.

If you prefer to send a check please make it out to:
ShareTheCaregiving/NCCI 
c/o The National Center for Civic Innovation – 6th floor
121 Avenue of the Americas
New York, NY 10013-1590
EVERY DOLLAR COUNTS – YOUR GIFTS ARE
TAX DEDUCTIBLE

Our website DONATE page also lists a variety of other ways people can give, including by shopping online through our website.

We wish you a Beautiful New Year!
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Please send us your STC group photos and stories to inspire new groups. You can help us gain visibility and “LIKE US” on Facebook: Share The Care™ and: Twitter ShareTheCareOrg

December 2016 Appeal

SHARETHECAREGIVING INC. A PROGRAM OF
THE NATIONAL CENTER FOR CIVIC INNOVATION

STC Holiday Gift Box
Did you ever stop to think that the holidays have something in common with times of illness? They offer priceless opportunities to show our love and we often discover that we have received an even greater gift in return.
During the holidays, family caregivers and their loved ones can enjoy precious “quality time” together because of the efforts of their STC group. And for someone with no real family, their “created STC family” can replace loneliness and fear with comfort that can benefit them throughout the New Year. At the same time, individuals within a STC group can realize that working together has gifted each of them with of a profound life experience.
During this holiday season, if you have never made a donation to ShareTheCaregiving, Inc. before please consider giving a gift to support our efforts to reach and teach an even wider audience about STC and help to build a more caring and compassionate world for all of us.
We ask that you  take action now to make a tax-deductible donation of $100, $500 or $1,000, or whatever you can afford, to help us grow and expand our efforts. If you are currently part of a STC group, you can make a significant donation as a whole group by pooling your funds.
It’s easy to give online at:  www.sharethecare.org or if you prefer sending a check, please send to the address below and make it payable to:
ShareTheCaregiving/NCCI 
C/o The National Center for Civic Innovation – 6th floor
121 Avenue of the Americas
New York, NY 10013-1590
EVERY DOLLAR COUNTS – YOUR GIFTS ARE TAX DEDUCTIBLE

Our website DONATE page also lists a variety of other ways people can give, including by shopping online through our website.

THANK YOU.   ENJOY A HAPPY HEALTHY HOLIDAY!

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STC-Road Scholar

Click here to read full details and apply.

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STC thank you to Claire Culbertson

Claire Culbertson

Claire Culbertson, MPH
STC Volunteer Outreach Director

WISCONSIN’S LOSS WILL BE OREGON’S GAIN

From Sheila Warnock

In 2001 I heard from Claire Culbertson who, at the time, was working at the University of Wisconsin’s Comprehensive Cancer Center.  She called to ask permission to use our Share The Care™ (STC) model for a program to help women with breast cancer.   

A year later, late in 2002, as I was planning to start our non-profit organization, she was the first person to say  “count me in” and then she flew to New York to show she meant it.   That was 13 years ago and since then she has literally brought the “heart of Share The Care” to the entire State of Wisconsin.   We treasure her passion, hard work, and especially her friendship.  Now Claire and her husband, Michael, will be moving to Oregon and Wisconsin’s loss will surely be Oregon’s gain…and now STC’s Volunteer Outreach Director for the Northwest!

We want to acknowledge the magnificent contributions Claire has made to STC.  In 2011 I was in Wisconsin to train, and every time I turned around I met yet another incredible person who had started or been in a STC group not once, but more often, several times.  Claire has also started and served in several STC groups for close friends of her own.  In fact, the last one she organized is for a woman in her 90’s who is in good health, but living alone in a rural area.  She will surely benefit greatly from the support of her own “created family” nearby.

Claire brought and taught the STC model throughout the state of Wisconsin. She didn’t follow a road map, she built the road as she traveled.  In her own words she describes the journey:


From Claire Culbertson

University of Wisconsin Comprehensive Cancer Center (UWCCC 1999-2002) I learned about Share The Care™ from a co-worker who organized a STC group for one of their former colleagues.  I asked Lisa about it one day when she had a copy of the book with her.  She explained the process they followed directly from the book.  That was my first introduction into the world of caregiving!

My role at the UWCCC was as an Outreach Specialist doing community outreach and education related to breast health.  The UWCCC had a grant from the Susan G. Komen Breast Cancer Foundation to train women in breast cancer prevention techniques. 

As the grant winded down, we looked for other opportunities for community outreach.  We decided to shift our focus to cancer survivorship, utilizing the STC model to provide support and assistance to women undergoing breast cancer treatment and recovery.  The Susan G. Komen Breast Cancer Foundation once again funded our idea to design and implement an outreach program utilizing the STC model.

 Simultaneously, we wrote a grant to the American Cancer Society to introduce the STC model to health professionals and faith communities in Wisconsin.  We recognized these groups of professionals were in a position to identify women (and men) in need of extra support, and we could reach a larger audience this way.  It was at this time that I contacted Sheila Warnock and made her aware of our work.

We enlisted the support of a hospital Clinical Social Worker who knew a patient (an unmarried, single woman) that was utilizing STC, and her friend (who was the “Captain” of her group), to help illustrate how her STC was a great support to her during treatment and beyond.  We traveled to several hospitals around the State of Wisconsin to offer presentations to nurses, social workers and chaplains about the benefits of a STC group to patients and families.

What was crucial to the success of the UWCCC program was the participation of members of an actual group, as well as my direct knowledge of how a STC group operates.  I became part of “Michelle’s Group”, visiting her and meeting other group members.  I saw first hand how instrumental the group was in serving not only her physical, but also her emotional needs.  We documented Michelle’s STC group and their journey on the DVD available for purchase through http://www.sharethecare.org

Area Agency on Aging of Dane County National Family Caregiver Support Program (NFCSP   2003-2012)

After leaving the UWCCC, I began working as the NFCSP Program Manager, launching the new federal program designed to provide education and support to families caring for the 60+ population of disabled and older adults.  STC was a perfect companion to the other resources available through NFCSP.  I continued to speak about the STC model at local, state and national conferences.

Greater Wisconsin Agency on Aging Resources (GWAAR   2011-2014)

In 2011, I was hired in a part-time role by GWAAR to introduce STC to Wisconsin Aging & Disability Resource Centers, and in particular, National Family Caregiver Support Program Coordinators and Caregiver Coalitions. 

Initially, GWAAR brought Sheila to Wisconsin to train 50 people who were to be part of the effort and to introduce the new concept and advertising behind STC™ Stations.  She shared the advertising designed to make a community aware of the model and direct them to a local person for information or coaching. 

Then, I traveled the state training qualified individuals to become STC™ Station “Managers” – a role in which they assist families in starting a STC group for someone they know and care about.  Once again, the Caregiver Coordinators and Information & Assistance Specialists were in a position to recognize when a family can use the extra support and care. We held regularly scheduled conference calls so all the managers in different parts of the state could exchange ideas and information.  They also benefited from presentations given on these calls by professionals with a specific expertise like marketing or Alzheimer’s Disease.

 We are proud to report, that as a result there are now 15 STC Stations in Wisconsin communities.  See the GWAAR website below for a list of Stations and a map with their locations:  http://gwaar.org/for-professionals/family-caregiver-support-for-professionals.html#STC 


CLAIRE, THANK YOU FOR YOUR ENORMOUS CONTRIBUTIONS

TO GROWING THE SHARE THE CARE MODEL IN WISCONSIN.

Get ready, Oregon, here she comes.


Who Cares for the Person Who Lives Alone?

An article by Sheila Warnock, American Women in Science Magazine (AWIS)
Spring Issue, Vol. 45

AWIS-cover

If you live alone, you have probably had thoughts flash through your mind like “If I fell in the shower and hit my head, how long would it take for someone to miss me?” or “What if I were seriously injured or ill… who would take care of me?”

Click to read or download Sheila’s article.
Click to view the eCare Diary video interview on this topic.

A Tribute to Sukie Miller

Tribute photo of Suki-Miller-PhD

March 15, 1988 will forever be etched into my memory. It was that cold, windy night when the seed, later to bloom into a comprehensive caregiving model, was planted at an emergency meeting for a friend in the office of Dr. Sukie Miller.

Dr. Miller had strongly urged her patient, Susan Farrow, to reach out past her emotional comfort zone and ask her friends for help. Susan was a divorced, working mom with two teens and a painful bone cancer. To make matters worse she had no family nearby. However, by bringing what was a diverse bunch of friends together for some honest dialogue, we were able to plunge into action the very next morning.

We owe a huge debt to the insight, wisdom, and brilliance of Dr. Miller who truly understood the power of “group.” The 12 of us who attended that meeting went on to prove her right by supporting our friend in every way imaginable until she died nearly four years later. And we managed it without any one getting stuck doing too much. And best of all, we were bonded forever by this challenging yet significant life experience that resulted in us becoming widely known as “Susan’s Funny Family.”

Later, Dr. Miller was the chief cheerleader when Cappy Capossela and I decided to document our systems into a handbook that others could follow to create a “caregiving family” of their own. Dr. Miller offered her guidance and gifted us with the eloquent FORWARD to Share The Care, first published in 1995.

Then, out of the blue, in early 2002 Cappy was stricken with a brain tumor and needed her own Share The Care group. Following Cappy’s death later that year, Dr. Miller again provided her enormous enthusiasm and encouragement for my decision to make Share The Care more widely known by founding our organization. And, as a member of our Board of Advisors for the last 10 years, she was always generous with her suggestions.

Dr. Sukie Miller was a profound influence in my life. I think it was her fearless and optimistic outlook that will be most treasured by me and surely by so many others in different parts of the world whose lives she touched. We will all miss this vivacious, and extraordinary woman with so many far-reaching legacies.

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SUKIE MILLER, Ph.D. was an early director of Esalen Institute, was a member of the Board of the Jung Institute of San Francisco and the Board of Medical Quality Assurance, the licensing board for the State of California. She had been a frequent consultant to Cancer and Social Action programs in Brazil.

In 1972 she founded and directed the pioneering Institute for the Study of Humanistic Medicine. One of the first researchers to study the cross cultural dimensions and implications of beliefs of the Afterdeath, her books Finding Hope When a Child Dies and After Death; How People Around the World Map the Journey After Life are published by Simon and Schuster.

Dr. Miller lived for years in Sao Paulo, Brazil where she continued to see clients with chronic and terminal diseases and worked extensively with groups.