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Archive For: Caring for the Caregiver

Elizabeth Dole Foundation Fellowship Applications

 The Elizabeth Dole Foundation is now accepting applications for our 2016 class of Dole Caregiver Fellows!

The Dole Caregiver Fellowship provides those caring for wounded, ill and injured service members and veterans the opportunity to advise national leaders through the Foundation’s network of public, private and nonprofit organizations providing services to caregivers.

Caregivers can click here to apply, or visit the Elizabeth Dole Foundation’s homepage at The application deadline is October 1, 2015.

Members of the 2015 fellows class stood on stage with First Lady Michelle Obama and VA Secretary Robert McDonald at the Foundation’s Hidden Heroes Coalition Summit to share how caring for a wounded warrior has impacted their lives.  They carried their message to Capitol Hill during nearly 150 meetings with Members of Congress. In February, fellows attended a Foundation gathering of more than 100 leaders in the areas of caregiving, veterans’ issues and volunteering to give their perspective on how the nation could provide better support to military caregivers. And in their home states, the fellows served as ambassadors and organizers, developing connections among caregivers and educating local associations, community groups and businesses.

Please help us give caregivers a voice by sharing this application with your communities.

We are seeking applications from those caring for service members and veterans from both pre- and post-9/11 generations. The application website lists which states currently have openings. Successful applicants for the 2016 class will raise awareness of caregiver issues as part of the Foundation’s Hidden Heroes Campaign, chaired by Tom Hanks.

Thank you for your continued support!

Steve Schwab
Executive Director
The Elizabeth Dole Foundation



The STC research study has been completed providing confirmation of what we have been saying about the STC experience for the last 20 years. We can now describe STC as an “evidenced-informed model.” (See below)

A HUGE THANK YOU to all of the STC care recipients, caregivers and group members from the US, Canada and Australia who participated in this important study. It could not have happened without you!   And we truly appreciate all the groups out there using STC to help more and more people who need caregiving support. BRAVO.

Unless you are in the healthcare field this study may not seem like a big deal, but for STC, it should help to open more opportunities for funding and programs so that we can reach, teach and help many more caregivers everywhere.

The Call to Action

Our job now is to get the word out to professionals.

Researcher, Amy Hegener and I need to present “SHARE THE CARE™ – An Established Model Supported by Research and Practice”at important conferences in late 2015 – into 2016 and have submitted abstracts.

Society for Social Work and Research
20th Annual Conference – Washington, DC

3rd World Congress on Integrated Care
International Conference – Mexico City

American Society on Aging
2016 Aging in America – Washington, DC

HealthCareChaplaincy 3rd Annual “Caring for the Human Spirit”
Global Conference – San Diego. CA

NOW, AFTER A YEAR OF HARD WORK to reach this point, we really need everyone’s support to cover our conference fees and travel.
THE GOAL IS $14,000

Please donate online at or if you prefer by check. Your can make a donation in honor of a friend or loved one. If you are in a STC group this is a great reason for a group donation.

Or If you prefer send us a check payable to ShareTheCaregiving/NCCI and mail it to:

ShareTheCaregiving Inc.
c/o The National Center for Civic Innovation – 6th Floor
121 Avenue of the Americas
New York City, NY 10013-1590

YOUR GIFTS ARE TAX DEDUCTIBLE. Please include your name and address so we can properly acknowledge your gift and; if you would like to be kept informed of STC news, your email address. As always your group stories and photos for our website are always encouraged and welcome.



Sheila Warnock

About the Research

The STC program is supported by a descriptive evaluation using a non-experimental mixed-methods design. The study sample was purposive and included a total of 143 participants from around the US, Canada and Australia. Data were collected via an online survey and through follow-up phone interviews.

The following research questions were addressed:

  1. Is participation in STC associated with a reduced level of burden for the primary caregiver and/or other family members?
  2. Is there an association between participation in STC and improved confidence in caregiving skills among group members?
  3. Is there a relationship between the shared experience and group members’ satisfaction?

The findings of this study suggest that the STC program is positively associated with the following outcomes:

  • contributing to a reduced level of burden among caregivers;
  • supporting a care receiver’s ability to stay at home with necessary supports, thereby decreasing the potential for reliance on more costly formal systems;
  • adding to or improving the well-being of participants, by remaining focused on a distinct psychological structure;
  • enhancing the caregiving skills of participants by preparing them for future caregiving situations; and
  • demonstrating variability that can be applied across settings and cultures.

These findings provide a foundation of supportive evidence that confirms STC as a best-practice model in the field of caregiving and one that can be replicated in a cost-effective manner across locations and challenges.  The results of this study further indicate that STC is effective in addressing a number of different challenges, whether short or long in duration.

It was the most rewarding experience of my life. It proved that I could contribute so much without feeling overwhelmed or overburdened.

It taught me to trust others, to know the real meaning of “team work”.

I think the military must be something like a Share the Care group — each member depending on the others and trusting with their whole hearts that they were supported. Emotionally, being able to choose to help according to my strengths and to “pass the buck” where I felt I was weak was a Godsend.”

– Research Study Participant

September 11-13th – Final Transition Conference in Tucson, AZ

STC at the ‘Science, Death, and Consciousness’ – Conference


Do you have more questions than answers about the end of life? Few topics are as full of myth and mystery in our culture as end of life discussions and experiences. And few topics are as present and pressing to Baby Boomers than the end of life. The Final Transition Conference introduces science where there had been speculation. It also introduces good research where there mainly had been rumination.

Limited spaces will also be available at the conference for those interested in CEUs and CMEs. The Final Transition Conference will also be streamed live for those who are unable to attend.

Presenting at the conference will be:  Stephan A. Schwartz, Sheila Warnock, Betsy MacGregor MD, Cynda Rushton PhD/RN, Sharon Murfin, Barbara Dossey RN/PhD, Pim van Lommel MD, Larry Dossey MD, Peter Fenwick MD, Julie Beischel PhD, Jim Tucker MD, and Marilyn Schlitz PhD.”

STC Website wins Today’s Caregiver Magazine Award!

… and the Award from Today’s Caregiver Magazine’s
2015 Caregiver Friendly® website goes to…


STC website homepage

Today’s Caregiver, the first national magazine for all family and professional caregivers, and  announce the 2015 Caregiver Friendly® Award recipients.  The Caregiver Friendly® Awards are designed to celebrate products, services, books and media created with the needs of caregivers in mind.

“HOW WE CAN HELP YOU?” is the theme of our NEW  web site. It was designed so that our varied caregiving audiences can locate the information they need about our highly regarded group caregiving model-Share The Care™.

Easy-to-navigate and color-coded for:
  • Caregivers & Concerned Friends
  • Health Professionals
  • Faith Communities and
  • Corporations
Visit for: information, resources, 23 forms, links to purchase book, videos, group stories, trainings, workshops, presentations and support.
About The Caregiver Friendly Awards:
Caregiver Friendly® Awards are presented by Today’s Caregiver magazine to celebrate outstanding books, media, products and services designed with the best interest of the family caregiver in mind. Today’s Caregiver magazine, launched in 1995, is published by Caregiver Media Group, which also produces the Fearless Caregiver and The Fearless Caregiver book which teaches caregivers how to become their loved one’s fearless advocates within the healthcare system.

7th Annual Palliative Care Conference

 On Friday, May 29th Sheila had the honor of being the closing session speaker for the

7th Annual Palliative Care Conference at Molloy College in Rockville Centre , NY.

Approximately 400 health professionals from local and surrounding communities, as well as some students were In attendance.

Phyllis Quinlan, PhD., RN-BC, Louis Cino, Dean of Molloy College and Sheila Warnock

Phyllis Quinlan, PhD., RN-BC, Louis Cino, Dean of Molloy College and Sheila Warnock

Phyllis Quinlan, who is on the Board of the College and also received several degrees from the College, introduced Sheila to the conference audience.

Earlier in the day before her lecture, Sheila was able to sit in on a workshop led by Phyllis  “How To Sustain the Joy in Being a Professional Caregiver.” 

Attention Nurses:  check out her Blog:


A heartwarming recognition!

From Sheila:

Recently, I got a note that I wanted to share with all of you, from Deborah Duda, the Share The Care Coordinator for the Share The Care™ Program on the island of Kauai (through Kauai Hospice.)  These folks are also highlighted on our STC home web site under HEALTH PROFESSIONALS – STC in Communities.

BRAVO to Deborah and all the Share The Care Volunteers in Kauai. THANK YOU FOR YOUR CONTINUED GREAT WORK!!!!!!

From Deborah:

Dear Sheila,

A quick note. A beautiful article appeared in The Garden Island Newspaper about us – our volunteers – and one particular family we serve.  It’s a couple facing ALS that Kalani Walther has become family to. It’s a touching story. And the article, “Sharing and Caring” was 2/3’s of the Front Page!!!!
Much Aloha,

STC thank you to Claire Culbertson

Claire Culbertson

Claire Culbertson, MPH
STC Volunteer Outreach Director


From Sheila Warnock

In 2001 I heard from Claire Culbertson who, at the time, was working at the University of Wisconsin’s Comprehensive Cancer Center.  She called to ask permission to use our Share The Care™ (STC) model for a program to help women with breast cancer.   

A year later, late in 2002, as I was planning to start our non-profit organization, she was the first person to say  “count me in” and then she flew to New York to show she meant it.   That was 13 years ago and since then she has literally brought the “heart of Share The Care” to the entire State of Wisconsin.   We treasure her passion, hard work, and especially her friendship.  Now Claire and her husband, Michael, will be moving to Oregon and Wisconsin’s loss will surely be Oregon’s gain…and now STC’s Volunteer Outreach Director for the Northwest!

We want to acknowledge the magnificent contributions Claire has made to STC.  In 2011 I was in Wisconsin to train, and every time I turned around I met yet another incredible person who had started or been in a STC group not once, but more often, several times.  Claire has also started and served in several STC groups for close friends of her own.  In fact, the last one she organized is for a woman in her 90’s who is in good health, but living alone in a rural area.  She will surely benefit greatly from the support of her own “created family” nearby.

Claire brought and taught the STC model throughout the state of Wisconsin. She didn’t follow a road map, she built the road as she traveled.  In her own words she describes the journey:

From Claire Culbertson

University of Wisconsin Comprehensive Cancer Center (UWCCC 1999-2002) I learned about Share The Care™ from a co-worker who organized a STC group for one of their former colleagues.  I asked Lisa about it one day when she had a copy of the book with her.  She explained the process they followed directly from the book.  That was my first introduction into the world of caregiving!

My role at the UWCCC was as an Outreach Specialist doing community outreach and education related to breast health.  The UWCCC had a grant from the Susan G. Komen Breast Cancer Foundation to train women in breast cancer prevention techniques. 

As the grant winded down, we looked for other opportunities for community outreach.  We decided to shift our focus to cancer survivorship, utilizing the STC model to provide support and assistance to women undergoing breast cancer treatment and recovery.  The Susan G. Komen Breast Cancer Foundation once again funded our idea to design and implement an outreach program utilizing the STC model.

 Simultaneously, we wrote a grant to the American Cancer Society to introduce the STC model to health professionals and faith communities in Wisconsin.  We recognized these groups of professionals were in a position to identify women (and men) in need of extra support, and we could reach a larger audience this way.  It was at this time that I contacted Sheila Warnock and made her aware of our work.

We enlisted the support of a hospital Clinical Social Worker who knew a patient (an unmarried, single woman) that was utilizing STC, and her friend (who was the “Captain” of her group), to help illustrate how her STC was a great support to her during treatment and beyond.  We traveled to several hospitals around the State of Wisconsin to offer presentations to nurses, social workers and chaplains about the benefits of a STC group to patients and families.

What was crucial to the success of the UWCCC program was the participation of members of an actual group, as well as my direct knowledge of how a STC group operates.  I became part of “Michelle’s Group”, visiting her and meeting other group members.  I saw first hand how instrumental the group was in serving not only her physical, but also her emotional needs.  We documented Michelle’s STC group and their journey on the DVD available for purchase through

Area Agency on Aging of Dane County National Family Caregiver Support Program (NFCSP   2003-2012)

After leaving the UWCCC, I began working as the NFCSP Program Manager, launching the new federal program designed to provide education and support to families caring for the 60+ population of disabled and older adults.  STC was a perfect companion to the other resources available through NFCSP.  I continued to speak about the STC model at local, state and national conferences.

Greater Wisconsin Agency on Aging Resources (GWAAR   2011-2014)

In 2011, I was hired in a part-time role by GWAAR to introduce STC to Wisconsin Aging & Disability Resource Centers, and in particular, National Family Caregiver Support Program Coordinators and Caregiver Coalitions. 

Initially, GWAAR brought Sheila to Wisconsin to train 50 people who were to be part of the effort and to introduce the new concept and advertising behind STC™ Stations.  She shared the advertising designed to make a community aware of the model and direct them to a local person for information or coaching. 

Then, I traveled the state training qualified individuals to become STC™ Station “Managers” – a role in which they assist families in starting a STC group for someone they know and care about.  Once again, the Caregiver Coordinators and Information & Assistance Specialists were in a position to recognize when a family can use the extra support and care. We held regularly scheduled conference calls so all the managers in different parts of the state could exchange ideas and information.  They also benefited from presentations given on these calls by professionals with a specific expertise like marketing or Alzheimer’s Disease.

 We are proud to report, that as a result there are now 15 STC Stations in Wisconsin communities.  See the GWAAR website below for a list of Stations and a map with their locations: 



Get ready, Oregon, here she comes.

Widow or Widower Wanted for a Wall Street Journal Video

MarketWatch (The Wall Street Journal) is seeking a New York City area widow or widower to interview, on camera, about financial advice following the death of a spouse so that their experience can help others.

A small camera crew would come to them at a time of their choosing sometime within the next 4-5 weeks.  The interviewer will go over questions with them in advance to make sure they are comfortable.

If interested, please email:

Or call: 212-416-3160

Presidential Proclamation — National Family Caregivers Month, 2014



– – – – – – –



Each day, courageous individuals step forward to help care for family members in need, their quiet acts of selflessness and sacrifice telling a story of love and devotion. Across our country, parents and children, siblings and spouses, friends and neighbors heroically give of themselves to support those in their lives affected by illness, injury, or disability. During National Family Caregivers Month, we salute the people who play difficult and exhausting roles, and we recommit to lifting up these Americans as they care for their loved ones while protecting their dignity and individuality.

In the United States, more than 60 million caregivers provide invaluable strength and assistance to their family members, and as the number of older Americans rises, so will the number of caregivers. Many of these dedicated people work full time and raise children of their own while also caring for the needs of their loved ones. Caregivers support the independence of their family members and enable them to more fully participate in their communities, and as a Nation, we have an obligation to empower these selfless individuals.

My Administration continues to work to improve many of the resources on which caregivers depend. The Affordable Care Act invested in programs that expand home and community-based services. To lift up a new generation of service members — our 9/11 Generation — we are fighting to ensure those who care for them have access to the support they need, including financial assistance, comprehensive caregiver training, mental health services and counseling, and respite care. Many caregivers rely on workplace flexibility and reasonable accommodations, and this year my Administration held the first-ever White House Summit on Working Families to develop a comprehensive agenda that ensures hard-working Americans do not have to choose between being productive employees and responsible family members. And next year, we will host the White House Conference on Aging, which will focus on the needs of older Americans and those who care for them.

Not only this month, but every month, let us work alongside our Nation’s caregivers and make certain they are able to provide the best possible care for their loved ones for as long as necessary. Together, we recognize those who place service above self, including the women and men looking after our veterans. By offering them the same comfort, social engagement, and stability they bring to others, may we remind them that they are not alone.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim November 2014 as National Family Caregivers Month. I encourage all Americans to pay tribute to those who provide for the health and well-being of their family members, friends, and neighbors.

IN WITNESS WHEREOF, I have hereunto set my hand this thirty-first day of October, in the year of our Lord two thousand fourteen, and of the Independence of the United States of America the two hundred and thirty-ninth.